Usher Syndrome Coalition

In 2008, the Usher Syndrome Coalition was founded out of a need to raise awareness for the most common cause of combined deafness and blindness. We began as an informal collaboration between a handful of researchers and families devoted to building a network of support for those affected, and improving communication between researchers. Today, the Usher Syndrome Coalition is the most comprehensive resource for the Usher syndrome community. The Usher Syndrome Coalition represents families on every continent and collaborates with researchers from some of the finest international organizations in the world.